SCD Community Engagement & Administration Spe

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ASH RC: SCD CTN Full Time Admin Support Wrkrs Washington, DC, US

Salary Range: $61,300.00 To $70,650.00 Annually

POSITION SUMMARY

The SCD Community Engagement & Administration Specialist supports the ASH Research Collaborative (ASH RC) Sickle Cell Disease (SCD) Community Engagement Program and provides administrative coordination for designated ASH RC staff. The role is primarily focused on advancing meaningful engagement with people living with SCD, their families, Community Advisory Boards (CABs), clinical research sites, and other stakeholders. The Specialist serves as a collaborative, responsive resource to ASH RC staff and external partners in support of program goals and strategic priorities.

ESSENTIAL DUTIES & RESPONSIBILITIES

SCD Community Engagement

Program Support and Coordination

• Support implementation and advancement of the ASH RC SCD Community Engagement Program in alignment with ASH RC strategic priorities.
• Coordinate assigned program areas and projects from planning through completion, including tracking timelines, deliverables, and follow-up across multiple work streams; monitor deadlines and potential risks, and
  * escalate* issues requiring higher-level decisions to the Senior Manager.
• Assist in developing and maintaining tools and processes, such as workflows, templates, and trackers, to improve consistency and efficiency across the Community Engagement Program.
• Support SCD Coalition and ASH Center for SCD Initiatives activities related to clinical trials, research issues, and patient and community engagement.

CAB Operations and Meetings

• Coordinate logistics and communications for ASH RC National CAB (NCAB), local CAB, Council Sites, research sites, committee, working group, and other SCD community engagement meetings and events, both virtual and in-person.
• Prepare meeting agendas, materials, participant communications, minutes and summaries, and follow-up action items; maintain rosters and related documentation.
• Support local CAB coordinators in maintaining and engaging local CABs, including onboarding, orientation, tracking, follow-up, and routine operational guidance; identify recurring needs and recommend process improvements to the Senior Manager.
• Support operational planning for monthly NCAB meetings in partnership with the Senior Manager, including scheduling, speaker coordination, materials, deck preparation, attendance, meeting technology, notes, action items, and follow-up.
• Assist with planning and facilitating focus groups, listening sessions, community discussions, and other engagement activities, including participant communication, materials, logistics, documentation, and follow-up, to gather feedback on research protocols, recruitment materials, and community needs and concerns.

Materials, Resources, and Outreach

• In collaboration with ASH RC staff, volunteers, and community stakeholders, support the development, review, and dissemination of plain-language, culturally responsive materials and Community Engagement Program resources, including the CAB Program Toolkit, coordinator trainings, engagement tools, and branded resources, that translate emerging research findings for people living with SCD and their families.
• Support community-facing outreach, marketing, and tabling at SCD awareness days, community recognition events, priority meetings, and other patient engagement activities, including materials, logistics, inventory, staffing coordination, event readiness, and post-event follow-up.

Project and Grant Support

• Provide structured project coordination support to grant-funded community engagement initiatives and other strategic research projects, as priorities require.
• Maintain milestone and action trackers; coordinate meetings, agendas, materials, and follow-up; support document organization and version control; and assist with progress-reporting inputs and project documentation.
• Support Community Engagement contributions to cross-program initiatives, such as the CAB Impact Report, Data Hub Living with SCD report, by providing project coordination, production timeline, tracking relevant milestones, coordinating requested inputs, and helping ensure community perspectives and deliverables remain visible.

Tracking, Reporting, and Relationships

• Maintain stakeholder information and interaction records in…