Community Heart Supporter

Volunteer Now has partnered with Be Collective to bring a dedicated online platform for volunteering to Northern Ireland. The platform supports volunteers through the volunteering process and helps connect more people with a wider range of opportunities. There’s lots of great features to Be Collective like messaging, making a profile, and being able to compile all your experiences, training and roles as well as the skills gained within a social CV.You

can search and apply for volunteer roles below. If you can’t find anything you like you at the moment – register now, then check back soon – new opportunities are added all the time!

Northern Ireland Rare Disease Partnership

We bring together individuals, families, carers, healthcare professionals, and policymakers to:

Raise awareness of the everyday realities of rare conditions

Influence services and support through lived experience

Promote equity in access to diagnosis, care, and treatment

Build networks that reduce isolation and increase understanding

We believe no one should face the challenges of a rare disease alone
, and our Support Group Leads help make that belief real.

Are you a great listener, passionate about connecting people
, and eager to support others on their journey?
As a Support Group Lead with NIRDP
, you’ll play a vital role in creating safe, welcoming spaces for people affected by rare diseases to share, connect, and feel heard
.

Whether you’ve lived experience yourself, or simply want to help others navigate life with a rare condition, this role is all about building community and offering understanding without judgment
.

• Host and guide regular support group meetings (online or in-person) in a warm and inclusive way
• Create a safe space where every voice is valued and respected
• Spark open, thoughtful conversations and ensure everyone feels welcome
• Help plan session topics or invite guest speakers, with support from the NIRDP team
• Share useful resources and signpost to relevant services as needed
• Keep in touch with NIRDP staff to share updates, ideas, or any group needs
• Help grow awareness of the group through community word-of-mouth and social media (optional)

Skills and experience gained Advice & Guidance Advocacy Communication Skills Community Development Public Speaking

Causes supported

Causes supported Community Disability Services Equality Health Human Rights

Northern Ireland Rare Disease Partnership

Northern Ireland, UK

Flexible - hours are based on your availability and other factors