Participant Management Lead - FTC; office locations and Lo

Job Description

Genomics England is looking for a Participant Management Lead to develop and advance the organisation’s approach to participant management, ensuring that individuals are recognised, supported, and engaged throughout their involvement with the National Genomic Research Library (NGRL).

In this role, you will be responsible for establishing a robust vision and strategic roadmap, laying the groundwork for effective and ethical participant management. This will include overseeing the ongoing management of consent preferences and facilitating appropriate opportunities to reconnect with participants for future research initiatives.

Success in this position will require a deep understanding of previous methodologies across various participant groups, such as supporting children as they transition to adulthood, to create a consistent and enduring experience for all.

The Participant Management Lead will work in close partnership with colleagues across multiple teams to embed a dependable, participant‑focused system that underpins long‑term research, engagement objectives, and Genomics England’s ethical commitments.

Please note this role is based on a 24‑month fixed term contract.

Everyday responsibilities include:

• Shape and communicate the long‑term vision for participant management, ensuring it supports Genomics England’s mission and can be applied across programmes at different stages.
• Define and establish the foundations of participant management, including processes, roles, and ways of working that enable consistent, ethical engagement and consent management.
• Understand the needs of different participant groups and use these insights to inform system requirements, service design, and future engagement approaches.
• Develop and maintain a practical roadmap of short, medium, and long‑term priorities, integrating plans with organisational governance and risk management.
• Task‑manage a small team with expertise in service design, user research, product management, ethics, and clinical knowledge to deliver the roadmap and key initiatives.
• Collaborate across teams including data, engineering, clinical, ethics, and research to ensure participant management is integrated and not siloed.
• Oversee the definition and implementation of participant‑facing processes, such as consent capture, preference management, withdrawals, and re‑contacting participants.
• Champion ethical, transparent, and participant‑centred practices, supporting decision‑making, strengthening public trust, and ensuring responsible data stewardship.

Skills and experience for success:

• Experienced in leading complex, cross‑team programmes and turning emerging or unclear areas into structured plans.
• Skilled at influencing senior stakeholders and building alignment without relying on formal authority.
• Proven track record in designing or improving services, systems, and processes at an organisational scale.
• Skilled in shaping business cases, procurement processes, and build versus buy decisions.
• Communicates clearly with technical, clinical, operational, and senior audiences.
• Values‑driven, thoughtful, and comfortable working in ethically sensitive or regulated environments.
• Collaborative, pragmatic, and calm under pressure, able to navigate ambiguity and long‑term challenges effectively.
• Experienced in engaging with participants, patients, or service users over time.
• Knowledgeable in consent, data governance, and long‑term records management.
• Background in health, research, public sector, or other complex organisational environments.

MSc or equivalent in a health related field.

Salary from £90,000

The successful candidate will be required to come to our Canary Wharf office once per week.

Please provide a cover letter explaining how your skills and experience align with this role and its requirements.

Closing date for applications – Friday 6th March

Being an integral part of such a meaningful mission is extremely rewarding in itself, but in order to support our people, we’re continually improving our benefits package. We pride ourselves on investing in our people and supporting them to achieve their career goals, as well as…