Participant Management Lead - FTC; office locations

Genomics England is a global leader in enabling genomic medicine and research, focused on creating a world where everyone benefits from genomic healthcare. Building on the 100,000 Genomes Project, we support the NHS’s world-first national whole genome sequencing service and run the growing National Genomic Research Library, alongside delivering numerous major genomics initiatives. By connecting research and clinical care at national scale, we enable immediate healthcare benefits and advances for the future.

Our mission is to provide the evidence and digital systems so that by 2035 genomics could play a role in up to half of all healthcare interactions, whilst securing the UK’s position as the best place to discover, prove and benefit from genomic innovations.

We are accelerating our impact and working with patients, doctors, scientists, government and industry to improve genomic testing, and help researchers access the health data and technology they need to make new medical discoveries and create more effective, targeted medicines for everybody.

Behind the Healthcare and Research outcomes, Genomics England delivers through designing, developing and operating complex healthcare software systems.

We're on the cusp of big changes with the real prospect of genomics becoming the fabric of everyday healthcare through the lifetime – from birth to old age.

Genomics England is looking for a Participant Management Lead to develop and advance the organisation’s approach to participant management, ensuring that individuals are recognised, supported, and engaged throughout their involvement with the National Genomic Research Library (NGRL).

In this is role, you willbe responsible forestablishinga robust vision and strategic roadmap, laying the groundwork for effective and ethical participant management. This will include overseeing the ongoing management of consent preferences andfacilitatingappropriate opportunities to reconnect with participants for future research initiatives.

Success in this position will require a deep understanding ofpreviousmethodologies across various participant groups, such as supporting children as they transition to adulthood, to create a consistent and enduring experience for all.

The Participant Management Lead will work in close partnership with colleagues across multiple teams to embed a dependable, participant-focused system that underpins long-term research, engagement objectives, and Genomics England’s ethical commitments.

Please note this role is based on a 24-month fixed term contract.

Everyday responsibilities include:

• Shape and communicate the long-term vision for participant management, ensuring it supports Genomics England’s mission and can be applied across programmes at different stages.
• Define andestablishthe foundations of participant management, including processes, roles, and ways of working that enable consistent, ethical engagement and consent management.
• Understand the needs of different participant groups and use these insights to inform system requirements, service design, and future engagement approaches.
• Develop andmaintaina practical roadmap of short, medium, and long-term priorities, integrating plans with organisational governance and risk management.
• Taskmanagea small team withexpertisein service design, user research, product management, ethics, and clinical knowledge to deliver the roadmap and key initiatives.
• Collaborate across teams including data, engineering, clinical, ethics, and research to ensure participant management is integrated and not siloed.
• Oversee the definition and implementation of participant-facing processes, such as consent capture, preference management, withdrawals, and recontacting participants.
• Champion ethical, transparent, and participant-centred practices, supporting decision-making, strengthening public trust, and ensuring responsible data stewardship.

Skills and experience for success:

• Experienced in leading complex, cross-team programmes and turning emerging or unclear areas into structured…