Sickle Cell Patient Affairs Liaison - West Coast

Overview

Sickle Cell Patient Affairs Liaison: The Sickle Cell Community is a dynamic space due to the complexity of the disease, access to care, social determinants of health, and lack of education around Sickle Cell Disease. People living with Sickle Cell Disease and their caregivers seek health care information from trusted sources, which puts community-based organizations (CBOs) at the center of care.

The Sickle Community Specialist (SCCS) role is to support CBOs and connect them to resources that may be limited as patient-run organizations. The SCCS is a community-based, organization-focused colleague who helps identify gaps across education, access to care, patient engagement, and local needs aligned to addressing the needs of patients and caregivers along the healthcare journey.

The SCD Community Specialist is a field-based, non-sales, non-promotional, community-facing colleague who serves as the point of contact for the Sickle Cell Community Based Organizations (CBOs) including local, regional, and national advocacy groups and individual patients and caregivers. The primary function is to liaise with CBOs and patient groups and their constituents on programs and other support offerings available from Pfizer.

The role reports directly to the U.S. Rare Disease National Patient Affairs Liaison Directors. The SCCS serves as the primary point of contact for patients, caregivers, executive directors, and other staff members of advocacy chapters for education, resources, hub information, sponsorship, and support. All SCCS activities are executed in close collaboration with legal, compliance and marketing colleagues to ensure thoughtful implementation that meets Pfizer’s high standards of ethical conduct.

• The Pfizer SCCS role has three key focus areas:
  Customer Engagement, CBO Account Management and cross-functional collaboration to meet the needs of the Sickle Cell community. Leading people without positional authority.

• Understand gaps and challenges faced by CBOs and convene across internal teams to support solutions for people living with SCD.

• Identify key stakeholders, CBO capabilities, and the local market related to capacity building and needs of the SCD community.

• Develop trusted partnerships with leaders in the Sickle Cell community to support advocacy efforts focused on education and patient empowerment/access to care.

• Understand local, regional, and national healthcare issues and best practices in the Sickle Cell space.

• Elevate the work of national/regional CBOs to share with the broader community and partner through Pfizer SMEs (Medical, Corporate Affairs, ADMs, etc.).

• Identify, connect, and communicate insights from stakeholders to develop mutually beneficial plans for Pfizer and the SCD community.

• Deliver comprehensive overviews of patient support resources and programs to patients, caregivers, and CBOs at Pfizer-sponsored events (in-person/virtual booths) at local, regional, and national levels.

• Identify opportunities to educate on the importance of SCD treatment and therapy optimization.

• Identify collaborative partnerships to broaden reach for disease education, access to care, and empowerment.

• Manage budget to prioritize commitments aligned with Pfizer and assigned CBOs to maximize strategic collaborations.

• Collaborate with RD Managers to ensure integrated patient offerings align with objectives in local market dynamics.

• Prioritize Pfizer’s support for key CBOs to maximize impact for people living with SCD.

• Identify best practices and help scale across the region and nation.

• Be a local expert on evolving healthcare landscape and market dynamics affecting SCD.

• Provide local insights to inform RD Brand Team on educational materials for patient engagement and support resources.

• Ensure patient and advocacy group engagement meets Pfizer’s standards of conduct and compliance.

• Manage annual budget to prioritize commitments for regional CBOs.

• Conduct needs assessments with CBOs to identify primary focus areas and alignment with Pfizer goals.

• Effectively communicate insights of the changing competitive landscape within Rare Disease to cross-functional colleagues.

• Schedule travel and…