Community Engagement & Support Officer

The Community Engagement & Support role is about providing greater sustainability and resilience for the Fahr’s Disease community and Fahr Beyond as a charity. The post holder will be building the capacity for Fahr Beyond to provide support for people living with Fahr’s and their families through creating a volunteer network that can provide an ongoing fortnightly support group. Additionally, through working with other organisations, the post holder will develop more support pathways and opportunities for patients;

this is envisioned as strategic work within the Parkinson’s and Dementia space.

This post will also play a key role in bridging Fahr Beyond’s work with the community and medical professionals to develop awareness of Fahr’s Disease.

• Support the development of a volunteer strategy for Fahr Beyond
• Actively manage the establishment of a volunteer network utilising prior expressions of interest, and you will support the onboarding of volunteers
• The main point of contact for volunteers and help resolve matters they may have

• Monitor and respond to incoming correspondence to Fahr Beyond, along with assigning any actions for response to the appropriate volunteer
• Support the trustees and volunteers with managing Fahr Beyond’s social media
• Work with Fahr Beyond volunteers to ensure that Fahr Beyond maintains regular communications with patients, medical professionals, and key partners
• Represent Fahr Beyond at sector events and/or meetings, particularly with organisations we are a member of

• Support (and if required coordinate) Fahr Beyond’s education and awareness events for Fahr’s Disease, and events connecting multiple stakeholders in the Fahr’s Disease space
• Support volunteers in creating fundraising and community involvement activities (online and potentially in-person)