Data Governance Coordinator; Part Time

Location: Hybrid, Newcastle Reports to: Chief Financial & Business Services Officer Employment Type: Fixed-Term, Part Time Salary Range: £30,000–£34,000 per annum (pro rata for part-time hours)
Line Management: None

TREAT-NMD is a global network committed to advancing diagnosis, care, and treatment for those living with neuromuscular diseases. We work collaboratively with experts, patients, and organisations to improve outcomes, accelerate research, and support groundbreaking initiatives worldwide.

The Data Governance Coordinator will play a key role in supporting TREAT-NMD’s data governance activities, with a primary focus on the PaLaDIn project and its Interactium platform. The role will ensure compliance with internal Data Protection, Information Security, and Business Audit requirements to high standards, including ISO
27001. The postholder will provide operational support for data governance processes, assist with audits, and contribute to maintaining integrity and security across all data-related activities.

• Support data governance activities for the PaLaDIn project and Interactium platform.
• Assist with internal Data Protection and Information Security compliance.
• Conduct and support business audits to ISO
  27001 standards.
• Collaborate with internal teams to ensure adherence to data governance policies.
• Provide guidance and support on data protection and information governance.
• Assist in developing and delivering training related to data governance.
• Maintain accurate records and documentation for compliance purposes.

• Strong understanding of Data Protection and Information Security principles.
• Familiarity with ISO
  27001 standards.
• Excellent attention to detail and organisational skills.
• Ability to manage multiple priorities and work independently.
• Strong communication skills for liaising with internal and external stakeholders.

• Degree or three or more years of equivalent experience in a relevant field.
• Experience in data governance, audits, or compliance.
• Knowledge of Office 365 governance and SharePoint configuration.

The postholder will be required to form working relationships with a diverse group of people internally and externally. Key contacts include:

• PaLaDIn Delivery Manager
• PaLaDIn Research & Project Associate
• PaLaDIn Project Manager
• WP2 Patient Coordinator
• PaLaDIn Tech Lead
• Other TREAT-NMD team members

• PaLaDIn project partners, registries, and relevant stakeholders

The postholder will be expected to develop and maintain an up-to-date and thorough knowledge of specific policies, data governance, and any related or associated processes and procedures. They will also be expected to develop an understanding of the rare neuromuscular disease field, as well as the general culture, products, services, and planned future initiatives of TREAT-NMD. Some UK and international travel, including overnight stays, may be required.

The postholder may occasionally be required to work outside normal working hours to deliver their key responsibilities.