Muscular Dystrophy Care Advisor - Paediatrics

Muscular Dystrophy Care Advisor - Paediatrics

The closing date is 26 February 2026

The successful person will be responsible for the coordination of specialist, complex support of children/young people with a diagnosis of Muscular Dystrophy.

They will be a single point of contact for the children and young people and their family and also other health professionals involved, assisting with advice and navigation of the services available, coordinating access to ongoing assessments and services, and to ensure the patients care objectives are met in order to support patient choice.

This is an exciting opportunity to join the specialist team at Nottingham Children's Hospital and is suitable for a nurse or allied health professional therapist to work with this cohort of patients.

Be a single point of access regarding information and advice for those children and young people affected by neuromuscular conditions, their families/carers and the professionals working with them.

Work alongside the clinical nurse specialists/AHPs to provide effective co‑ordination of hospital and community care for children and young people with Muscular Dystrophy.

With over 19,000 staff, we are one of the biggest employers in the city with a central role in supporting the health and wellbeing of our local population. We play a leading role in research, education and innovation.

Come and join our wonderful team  are big believers in diversity and welcome new ideas to help develop our team in order to deliver world class healthcare to the vast patient populations we serve. With endless personal development opportunities available, at NUH we will endeavour to turn your job into a career!

We particularly welcome applications from people who identify as Black, Asian and Minority Ethnic, or Disabled, as we are striving to be better represented at NUH.

In addition to the brief list above you must familiarise yourself with the full job description and person specification attached to this advert prior to applying.

Meet families at the time of diagnosis, offering accessible information in an appropriate format, listening to their needs and signposting and referring to resources as required, in a time efficient way.

Be a single point of access regarding information and advice for those children and young people affected by neuromuscular conditions, their families/carers and the professionals working with them.

Work alongside the clinical nurse specialists/AHPs to provide effective co‑ordination of hospital and community care for children and young people with Muscular Dystrophy.

Autonomously manage their own paediatric caseload; co‑ordinating, assessing and supporting children and young people and families/carers affected by Muscular Dystrophy.

Have oversight of children and young people admitted into hospital, encouraging and supporting early discharge planning by initiating the conversation early, during the assessment process.

Educate children and young people and their families/carers on all aspects of their specific disease and its progress/effect.

Provide training and information days for children and young people and their families/carers and other professional groups.

• Registered Children's Nurse
• Evidence of Continuing Professional Development
• Formal leadership and management training
• Health or other relevant degree

• Significant post registration experience in Neuromuscular conditions (Adults or Paediatrics)
• Knowledge and recent experience of caring for patients with complex conditions
• Experience of a liaison role
• Audit or research within the clinical area

• Ability to convey sensitive information in an empathetic manner to patients, relative/carers and staff.
• Demonstration of team working and ability to work within a team
• Demonstrate evidence of providing formal teaching sessions

• Demonstrate an ability to prioritise own workload

This post is subject to the Rehabilitation of Offenders Act (Exceptions Order) 1975 and as such it will be necessary for a submission for Disclosure to be made to the Disclosure and Barring Service (formerly known as CRB) to check for any previous criminal convictions.

Nottingham University Hospital NHS Trust QMC

£47,810 to £54,710 a year (Per annum, pro rata)

Permanent

Part-time

-VC

Nottingham University Hospital NHS Trust QMC