Information Specialist Coordinator

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Information Specialist Coordinator

The Christopher & Dana Reeve Foundation is dedicated to curing spinal cord injury by advancing innovative research and improving quality of life for individuals and families impacted by paralysis. Its National Paralysis Resource Center (NPRC) provides trusted information, real-time help, peer and family support, community investment, outreach, education, partnerships, and performance-driven services nationwide. It provides the most comprehensive knowledge, tools, and services for individuals impacted by paralysis through a dedicated Information Specialist team.

Today, we seek a full-time Information Specialist (IS) Coordinator for the National Paralysis Resource Center (NPRC). This individual will provide information and referral services to people with paralysis, their families, and their caregivers. This position is responsible for using resources (for example, fact sheets, educational materials, and customized research) to answer client questions and help them navigate the complexities of paralysis.

The coordinator will use approved tools and our client database to support timely responses, consistent documentation, and simple reporting that helps the team learn from its work.

Note:

this is a remote position for a US Based employee, who is available for a 9AM to 5PM Eastern Time work schedule

The individual is responsible for performing job duties, interacting with the community and coworkers, and managing oneself in a manner consistent with, and in support of, the organization’s mission and core values.

This position is primarily remote with standard hours of 9:00 a.m.–5:00 p.m. Occasional on-site presence at the Short Hills, NJ office may be requested (for example, team meetings, trainings, or other program needs). Advance notice will be provided whenever practicable.

• Respond to inquiries via phone, email, chat, and mail; record complete, accurate data in the CRM.
• Provide materials and guidance; compile and send information packets using approved templates and the knowledge base.
• Contribute to the Foundation’s social media presence by posting and responding across current and emerging platforms (e.g., Facebook, Instagram, Linked In, X/Twitter, Tik Tok), coordinating with staff to ensure timely replies, accessible captions/alt text, and accuracy.
• Use approved scheduling tools to plan and publish posts.
• Apply approved templates to maintain consistency and accessibility.
• Leverage approved chatbot/search assistants to locate resources and draft responses, per manager approval.
• Moderate Nurse Linda and other webinars to support the speaker and promote NPRC services.
• Perform literature searches to customize answers; forward new resources for inclusion in fact sheets and the knowledge base.
• Participate in testing client-database features; follow data-entry standards that support simple dashboards and quality checks.
• Write case summaries showing the impact of IS assistance.
• Collaborate across departments to leverage the Foundation’s full range of expertise and service in support of our clients

• Exhibit at national conferences to promote and explain NPRC services.
• Attend webinars and in-service sessions to expand knowledge in paralysis and disability fields.
• Participate in the internal review committee for Quality-of-Life grant approvals.

• Ability to obtain and maintain accreditation as a Community Resource Specialist in Aging and Disability by InformUSA.
• Interest in assisting individuals living with paralysis, their families, and caregivers.
• Empathy, compassion, and the ability to establish rapport quickly.
• Organize…