Philanthropy Manager

Title

Title: Philanthropy Manager

Location: United States

To support and connect the global FOP community while driving research toward treatments and a cure.

The International Fibrodysplasia Ossificans Progressiva Association (IFOPA) is the leading international nonprofit organization dedicated to accelerating fibrodysplasia ossificans progressiva (FOP) research initiatives and supporting those impacted by the ultra‑rare genetic disease. A volunteer board of directors governs the IFOPA. We hold ourselves accountable to the FOP community. As an organization, we work closely with patients and families, national FOP organizations around the world, and leading clinicians, scientists, and drug developers.

The Philanthropy Manager is responsible for the fundraising efforts of the IFOPA. This role reports to the Executive Director and interacts collaboratively with the IFOPA’s donors, staff, Board of Directors, committee members, and fundraisers. The Manager’s primary responsibility is managing relationships with annual, major and planned gift donors as well as community fundraisers to meet or exceed the organization’s annual revenue budget while adhering to the expense budget.

Expanding existing sources of revenue while identifying and securing new revenue to meet or exceed goals is a key role of this position. The Philanthropy Manager works cross‑functionally with other staff members to align fundraising efforts with organizational objectives. To articulate the need for organizational support, the Manager stays apprised of all current IFOPA research projects, family services programs and activities, and awareness and advocacy campaigns.

Ideal candidates should demonstrate proven fundraising success and be ready to drive the process at the IFOPA with innovation, enthusiasm, and initiative.

The Philanthropy Manager position is a full‑time, exempt position. All IFOPA staff members work remotely from their homes. Travel is required and could consist of up to 5‑10 trips per year with the potential for occasional international travel.

The IFOPA offers a rewarding career working for a highly regarded patient advocacy organization in a disease space with significant research and drug development activity. Our staff members like working at the IFOPA because of our mission, work‑life balance, benefits, and culture:

• Opportunity for career development in a small, fast‑paced, hands‑on environment
• Competitive base pay is determined by factors including, but not limited to, relevant work experience, education, etc
• Work in a virtual environment
• Generous paid time off plus holidays
• Joining our dedicated team affords the gratification of knowing beyond a doubt that you will impact the lives of individuals and families living with a devastating, one‑in‑a‑million diagnosis

The salary range for this position is $75,000‑85,000. The IFOPA provides a generous contribution to health insurance (or employees may opt for a medical waiver allowance if otherwise insured). The IFOPA provides dental and vision insurance, short‑term and long‑term disability, parental leave, a generous PTO policy, and paid holidays. A stipend is provided for the purchase of home office equipment and there is a monthly stipend for cell and WIFI service.

The Philanthropy Manager works closely with the Executive Director, Operations Director, and Marketing Manager in the execution of all duties. The Program Specialist provides support for development activities.

• Exceed the organization’s annual fundraising revenue budget of $1,500,000+, primarily through major gifts, annual appeals, monthly donors, and community fundraising
• Build and implement the organization’s development plan to complement its strategic plan and annual fundraising budget, with the intent to increase revenue goals annually
• Engage and expand opportunities for existing donors while identifying and securing new sources of support
• Develop and implement a major gift plan, including identifying and researching prospects, and working with the Executive Director to:…