Research Coordinator - Maternity Cover (12 months

Research Coordinator
- Maternity Cover (12 months)
Job Purpose

As the Research Coordinator, you will be responsible for monitoring the progress of our existing research grants, supporting the delivery of PSP and CBD’s first‑ever James Lind Alliance Priority Setting Partnership, and scoping the launch of a new grant scheme. You will be reporting to our Chief Executive, James Cusack.

Your priorities will be to:

• Monitor the progress of our research grants.
• Ensure we are funding research which will have the greatest impact on improving the lives of people with PSP or CBD.
• Promote and lead on the involvement of the public and patients in research.
• Help to raise the profile and interest in research into PSP & CBD.
• Maximise the opportunities for people living with a diagnosis to participate in research programmes and trials.
• Maintain our grants management system and ensure our grant management process is in line with good practice in the sector.
• Develop a sector‑leading priority setting partnership.

Contract Type

Full Time – Fixed Term Contract (Maternity Leave Cover) for up to 12 months.

£37,127 per annum full time.

Hours of Work & Annual Leave

• 35 hours per week - this may include working some unsociable hours, including evenings and weekends.
• 28 days plus bank holidays. Pro‑rated for part‑time role.

The main office is in Milton Keynes, and we have a hybrid working policy with most staff spending one day a week in the office and the remainder working from home. We aim to maximise the time we have together to collaborate and innovate for the benefit of people living with PSP or CBD.

Travel across the UK is necessary.

There is some flexibility for a 4 or 5 day a week contract. If you are interested but would like to take the post on less than 5 days a week, please indicate this on your application.

• Work with the CEO and the Chair of the Research Committee to monitor research grants and scope new grant schemes that will continue to drive progress in PSP & CBD research
• Develop relationships with other funders in the neurodegenerative disease field and consider opportunities for co‑funding where appropriate to maximise impact
• Develop a sector‑leading priority setting partnership.
• Support PSP & CBD research progress wherever possible, including facilitating researcher collaboration, helping with research study participant recruitment and assisting industry with their understanding of patient and carer experiences
• Facilitate the involvement of patients in research and trials.
• Working with the Communications Manager, ensure that PSPA’s research activities and research news are communicated to our community via social, web and print media. This includes writing or contributing to features in PSPA Matters, the charity’s magazine
• Produce lay interpretation for our internal and external audiences relating to complex research matters and outcomes
• Support the Helpline team in responding to calls and emails about research‑related topics and in developing research‑related literature
• Support the fundraising team in developing campaigns, appeals and applications to trusts for research funding
• Manage PSPA’s research grants portfolio, ensuring adherence to appropriate governance and working with the finance team to track commitment and expenditure, providing detailed reporting to the CEO and Trustees
• Responsible for ensuring the Manual for Managing Research is kept up to date in line with AMRC best practice.
• Develop and maintain relationships with grantees.
• Represent PSPA at research events as well as organise PSPA’s research events including International Symposiums.

The duties may be changed and/or varied to meet changing circumstances at the discretion of the CEO and Board of Trustees.

• A BSc in a biomedical science or strong relevant experience.
• Experience of grants administration and governance, including peer review of applications and reports.
• Commitment to and understanding of the importance of involving the public and people with lived experience in research.
• Some understanding of the neurodegenerative disease research landscape, including potential for collaborations with other funders
• A natural…