Remote Lead: Registry & Insights

The International Fibrodysplasia Ossificans Progressiva (IFOPA) is seeking a Real-World Evidence Manager to design and run RWE studies within the FOP community. You will report to the Research Director, turning strategic priorities into well-structured programs and ensuring strong governance and regulatory practices.

You will manage volunteer members, collaborate with researchers and partners, and travel as needed, including international travel.

We are seeking a motivated Remote Real-World Evidence Lead:
Registry & Insights to join Bio Space in Kansas City, MO, United States.

If your experience matches this role, we encourage you to apply.

All applications are reviewed carefully by our team.

This is a Full Time role.

The position is based in Kansas City, MO, United States.

This opportunity is part of our work in Bio & Pharmacology & Health, Management & Operations.