Rare Disease Specialist Lead; Strategic Accounts

Join us as a Rare Disease Specialist Lead (Strategic Accounts)!

Join Abeona Therapeutics as a Rare Disease Specialist Lead in our Strategic Accounts department and be a part of a mission-driven organization devoted to putting patients first. In this fully remote role, you will play a crucial part in ensuring that our cutting-edge health care solutions get to the patients that need them. Collaborate with talented individuals dedicated to transforming lives through innovative therapies.

Abeona

Therapeutics Inc.:
Who We Are Our Values:
Patient First | Innovation | Integrity | Determination | Trust

At Abeona Therapeutics, we exist for our patients and their caregivers; their needs guide our decision-making. We challenge ourselves to think differently, move quickly, and deliver solutions. We hold ourselves to the highest ethical and quality standards. We persevere with resilience and focus to achieve our mission. We build trust through humility, mutual appreciation, openness, and respect.

Your day-to-day as a Rare Disease Specialist Lead (Strategic Accounts)

Abeona Therapeutics is seeking a highly motivated and strategic Rare Disease Specialist Lead to manage a team of Rare Disease Specialists responsible for identifying, engaging, and developing referral networks that support patients living with Recessive Dystrophic Epidermolysis Bullosa (RDEB).

Reporting to the National Director, Strategic Accounts, this remote, field-based leadership role is responsible for driving performance across the strategic account organization while ensuring alignment between patient identification, referral generation, and treatment center success.

Rare Disease Specialist Lead will lead and develop a team of Rare Disease Specialists focused on expanding disease awareness, strengthening referral pathways, and facilitating appropriate patient referrals to Qualified Treatment Centers (QTCs). In addition, the Specialist Lead will maintain direct responsibility for a portfolio of assigned QTCs, serving as the executive commercial lead responsible for fostering strong institutional partnerships, supporting patient pull-through, optimizing account performance, and addressing barriers to treatment access.

This individual will partner closely with Commercial, Medical Affairs, Patient Services, Advocacy, Market Access, and Operations to ensure a seamless patient journey from identification through treatment while driving strategic account excellence across the organization.

Schedule

The general working hours for this remote role are Monday to from 9:00 a.m. to 5:00 p.m. (start and end times may vary) (with some late night or weekend work on occasion).

Does this sound like you?

To thrive as a Rare Disease Specialist Lead, the right combination of experience, education, skills, and attitude is essential.

You've spent 10+ years in biotech, pharma, or specialty therapeutics, and some of your proudest moments come from helping your team grow and succeed. Rare disease or gene therapy experience? Even better. You love building genuine partnerships with treatment centers and seeing those relationships make a real difference for patients. You enjoy teaming up across functions to solve problems together, and you're excited to spend time on the road (about 50–70%) because you know every connection brings hope to people living with RDEB.

If putting patients first is what drives you, we'd love to meet you!

Essential Responsibilities and Duties Leadership and Team Development

• Recruit, coach, develop, and lead a high-performing team of Rare Disease Specialists.
• Establish clear performance objectives, accountability measures, and development plans aligned with organizational goals.

Education and Stakeholder Engagement

• Deliver compelling and compliant educational presentations tailored to the needs of healthcare professionals and institutional stakeholders.
• Identify opportunities for regional advisory boards, speaker programs, and educational initiatives that support disease awareness and patient identification.
• Facilitate collaboration among key stakeholders to enhance understanding of RDEB, patient identification, and referral pathways.
• Build and maintain relationships with key opinion leaders and influential stakeholders within the EB community.
• Support local and regional educational initiatives that align with Abeona's commercial strategy.

Conference Planning and Management

• Support Abeona's presence at key medical, scientific, and industry conferences, including national and regional…