Sickle Cell Patient Affairs Liaison

Sickle Cell Patient Affairs Liaison:

• The Sickle Cell Community is a dynamic space due to the complexity of the disease, access to care, social determinants of health, and lack of education around Sickle Cell Disease. People living with Sickle Cell Disease and their caregivers seek health care information from trusted sources which puts community-based organizations (CBO's) at the center of care. The Sickle Community Specialist (SCCS) role is to support CBOs and connect them to resources that may be limited as patient run organizations.
  
  The role of the SCCS is to be a community based organization focused colleague that will help identify gaps across education, access to care, patient engagement as well as the local lead aligned to addressing the needs of patients and caregivers along the healthcare journey.

• SCD Community Specialist is a field based, non-sales, non-promotional, community-facing colleague who serves as the point of contact for the Sickle Cell Community Based Organizations (CBO's) including local, regional, and national advocacy groups and individual patients and caregivers. The primary function of the SCCS is to liaise with CBO's and patient groups and their constituents on programs, and other support offerings available from Pfizer.
  
  The role reports directly to the U.S. Rare Disease National Patient Affairs Liaison Directors.

• The SCCS serves as the primary point of contact for patients, caregivers, executive directors, and other staff members of advocacy chapters for the purpose of education, resources, hub information, sponsorship, and support.

• All SCCS activities are executed in close collaboration with legal, compliance and marketing colleagues to ensure that they are implemented in a thoughtful manner that meets Pfizer's high standards of ethical conduct.

• The Pfizer SCCS role has three key focus areas:
  Customer Engagement, CBO Account Management and working cross functionally to meet the needs of the Sickle Cell community. Leading people without positional authority

• Understanding the gaps and challenges that the CBO's may face and the ability to be a convener across our internal matrix team to effectively support the different functions that are driving solutions for people living with SCD.

• Identify key stakeholders, CBO capabilities, and the local market as it relates to capacity building and the needs of the SCD Community

• Develop trusting/ transparent partnerships with key leaders in the Sickle Cell community to partner and support their advocacy efforts aligned to education and patient empowerment/ access to care.

• Seek to understand key local, regional, and national healthcare issues and best practices aligned to the Sickle Cell space

• Elevate the work the National/ Regional CBOs are doing to help share outwardly with the broader community aligned to our ability to partner through Pfizer's SME (subject matter expert) functions (Medical, Corporate Affairs, ADMs, etc.)

• Identify, connect, and communicate multiple insights from various stakeholders to develop a plan of action that is mutually beneficial to Pfizer and the Sickle Cell Community.

• Deliver comprehensive overview of patient support resources and programs to patients, caregivers, and CBOs at various Pfizer-sponsored events (e.g., in-person/virtual booth exhibits) at local, regional, and national levels.

• Identifying key opportunities to educate on the importance of the treatment of SCD and the importance of optimizing their therapy.

• To identify collaborative partnerships where we could broaden our reach to the SCD community aligned to disease education, access to care and empowerment

• Managing the budget to prioritize commitments that align with the goals of Pfizer and assigned CBOs and to maximize strategic collaborations of key imperatives that ladder up to the brand strategies.

• Collaborate with RD Managers to ensure that the integrated patient offerings align with intended objectives in the context of local market dynamics.

• Prioritize where Pfizer's support for key CBOs can help the organizations bring the most impact to people living with SCD.

• Identify best practices and help scale across the region and nation.

• Be a local expert on the evolving healthcare landscape and the market dynamics of key health systems and impact on SCD

• Provide local insights to inform RD Brand Team on development of educational materials for patient engagement and patient support resources that fill needs within the patient community.

• Ensure that all aspects of patient and advocacy groupengagement are implemented in a thoughtful manner that meets Pfizer's high standards of conduct and compliance.

• Manage annual budget to prioritize commitments and meet the needs of assigned regional CBOs.

• Conduct needs assessments with CBOs to identify areas of primary focus and to determine points of alignment with Pfizer business goals and objectives.

• Assist in effectively and compliantly communicating insights of the changing competitive landscape within Rare Disease to…