Target - ALS Assistant

Job Summary
The Target-ALS Assistant will provide technical and research support for various functions and duties related to clinical research operations at the UBC Amyotrophic Lateral Sclerosis & Related Disorders (ALSRD) Clinic, with a primary focus on the “Target ALS” global natural history longitudinal study.

This position is situated in the Djavad Mowafaghian Centre for Brain Health (DMCBH) – UBC Vancouver campus. Working conditions consist of locked and shared office space with office furnishings and shared supplies.

In addition to areas of the hospital and DMCBH, outpatient study visits take place in clinical offices/exam rooms, and research recording and communication occurs within the research office. Attendance at study progress or research meetings within the hospital or DMCBH is expected. Attendance at clinical research‑related professional development training programs or webinars will be strongly encouraged.

Organizational Status
This position reports to the Clinical Research Manager and works in collaboration with the Clinical Research Coordinator. Additional oversight may be provided by the Research Coordinator and Principal Investigator, Dr. Erik P. Pioro. The role liaises with research study participants, study site staff, UBC/VCH institutional staff, and study sponsor personnel as needed.

Work Performed
Summary of Work Performed – Target ALS Biomarker Study.

Research & Technical Support

Provides research and technical support for a large, multi‑site longitudinal observational study involving neurological research participants, using established methods and procedures.

Assists with routine protocol‑related activities, including review of study materials, preparation of research documentation, and support of scheduled study visits and assessments, under supervision.

Performs research tasks in accordance with approved study protocols, laboratory manuals, and direction from senior research staff.

Data Collection & Data Management

Supports the collection, recording, entry, verification, and maintenance of study data related to clinical research assessments, questionnaires, and visit activities using standardized forms and approved electronic systems.

Assists with upkeep of study databases and performs routine data review and quality checks, identifying missing or inconsistent data for follow‑up by senior team members.

Organizes and maintains study records, visit logs, sample logs, trackers, and supporting documentation required for routine study operations.

Participant Interaction & Study Procedures

Assists with participant‑related activities for both patient and control cohorts, including screening support, enrolment and visit tracking, scheduling assistance, and follow‑up communications, in accordance with study requirements.

Supports informed consent processes by preparing and organizing consent materials, tracking consent status, and confirming documentation prior to protocol‑defined activities.

Conducts participant‑facing research activities within scope of role, including administering standardized questionnaires and assessments, assisting with interviews, and providing general guidance related to study procedures.

Supports protocol‑defined remote or telephone‑based follow‑up activities as directed, including documentation of participant‑reported information.

Sample & Materials Management

Assists with protocol‑defined collection support, handling, labeling, processing, storage, inventory tracking, and preparation for shipment of biological samples, following established procedures.

Maintains biospecimen documentation such as sample logs, freezer inventories, and shipment records under supervision.

Supports organization and maintenance of study supplies, laboratory materials, and basic research equipment required for participant visits and sample processing.

Regulatory Compliance & Quality Support

Assists with preparation, organization, and maintenance of research ethics and regulatory documentation related to the study, including amendments, renewals, and essential study files.

Documents and communicates study‑related events or issues, including participant‑reported concerns or adverse events,…