Patient Engagement Liaison; Midwest

PTC Therapeutics is a global commercial biopharmaceutical company. For over 25 years our team has been deeply committed to a unified purpose:
Extending life's moments for children and adults living with a rare disease.

At PTC, we cultivate an inclusive culture where everyone feels valued, respected, and empowered. We welcome candidates from all backgrounds to join our team, fostering a strong sense of belonging.

Visit our website to learn more about our company and culture! Site:

The Patient Engagement Liaison is a field-based position that supports those living with rare diseases, their caregivers and rare disease patient advocacy organizations. In this role, you will be at the heart of PTC's efforts to connect with and support rare disease communities. This role will primarily support the Phenylketonuria (PKU) community and may also include other communities in therapeutic areas of interest to PTC.

• Engages with the rare disease community, including patient advocacy organizations, to better understand the rare experience and incorporate those insights throughout PTC.
• Collaborate internally with other PTC teams to help identify, educate, build, and leverage relationships with those living with rare diseases, their caregivers, and Patient Advocacy Organizations.
• If appropriate, assist the community with resources to help remove access barriers to help gain coverage for marketed products.
• Build patient advocacy and community relationships for currently marketed product disease states and those in development, consistent with applicable regulations.
• Works cross functionally with medical, communications, commercial, legal and compliance colleagues to ensure country specific guidelines, standards and regulations are followed.
• Connect families to Patient Advocacy Organizations and resources.
• Develop, plan and execute educational programs for those living with rare diseases and their caregivers.
• Supports Patient Advocacy Organizations through shared interests in education and programs
• Work with the rare disease community to advocate for access to care and therapies

• An empathetic and compassionate person that can relate to rare families and their challenges.
• Understanding of healthcare, specialty pharmacy, pharma, and biotech industry.
• Maintenance of all compliance rules and confidentiality.
• Demonstrated leadership working as part of cross functional teams.
• History of building and maintaining strong relationships, internally and externally.
• Proficiency with Microsoft Office suite and zoom.
• Excellent verbal and written communication, as well as presentation skills, including the ability to explain technical information to non-technical audiences.
• Ability to work independently and collaboratively in a fast-paced matrixed team environment consisting of internal and external members.
• An analytical thinker with excellent critical thinking skills and the ability to adapt to changing priorities and deadlines.
• Excellent planning, organization and time management skills.
• Ability to enter data quickly, confidentially and accurately into CRM.

• Bachelor's degree
• 5 years of experience in pharmaceutical, biotechnology, advocacy, medical, or related field.
• Experience supporting people with rare diseases, their caregivers and advocacy organizations.

• Degree in a related clinical or scientific discipline including, but not limited to nursing, public health, social work, nutrition, dietetics.

• Up to 75% domestic travel, including overnights, weekends and evening responsibilities as needed. Potential for international travel as needed.
• Valid driver's license and clean driving record.

• Field-based position located in the continental US, with easy access to a major airline travel hub. Travel as required: driving, airline, and/or public transportation.
• Ability to travel extensively throughout assigned territory, country and potentially globally.

  Expected Base Salary Range: $120,000 - $140,000. The base salary offered will be contingent on assessment of candidate education level, background, and experience relative to the requirements of the position they are being considered for, as well as review of internal equity.

  In addition to base salary, PTC employees are also eligible for short- and…