Executive Director, State Government Affairs

Role:
Executive Director, State Government Affairs at Stoke Therapeutics, leading state-level policy strategies to support access to RNA medicines for severe genetic diseases like Dravet syndrome.

• develop and execute comprehensive state advocacy plans;
• monitor and influence legislation, regulation, Medicaid, and insurance policies affecting rare diseases;
• shape Medicaid and pediatric rare disease policies;
• build relationships with policymakers, patient groups, and stakeholders;
• manage lobbying campaigns, external consultants, and compliance;
• coordinate federal and state engagement.

• bachelor's degree (advanced preferred);
• 12+ years in government affairs, public policy, or healthcare policy, with significant state experience;
• knowledge of Medicaid, managed care, insurance, and rare disease access;
• proven success in multistate legislative and regulatory strategies;
• established relationships with policymakers and advocacy groups;
• excellent communication, collaboration, and strategic skills;
• willingness to travel up to 40%.

rare disease, pediatric neurology, genetic testing, Medicaid, policy advocacy, biotech/pharma experience.

hybrid role based in Bedford, MA, relocating to Waltham, MA, with 30-40% travel.