Development and Administrative Assistant

The National Tay-Sachs & Allied Diseases Association (NTSAD) is one of the nation’s oldest patient advocacy organizations. We support individuals and families affected by ultra-rare genetic diseases, specifically Tay-Sachs, Canavan, GM1, and Sandhoff. Our mission is to drive research, build community, and provide unwavering support to families navigating these devastating diagnoses.

We’re seeking a detail-oriented, organized, and compassionate part-time Development and Administrative Assistant to support our fundraising, donation processing, and event support. As a key member of our small and collaborative team, this position helps ensure the smooth administration of development operations while contributing to meaningful engagement with donors, families, volunteers, and community partners.

• Process donations, including digital bank deposits, and ensure timely and accurate gift entry in our CRM (Donor Perfect)
• Maintain donor records, constituent information, and fundraising data with a high level of accuracy
• Prepare and distribute donor acknowledgement letters, tribute notifications, and other stewardship communications
• Coordinate periodic donation and reconciliation batch reports for the organization’s accountant
• Support fundraising campaigns, appeals, and donor engagement initiatives

• Assist with general office administration and day-to-day operations
• Coordinate vendor relationships and office supplies as needed
• Support NTSAD staff on an as-needed basis
• Support special projects and other organizational initiatives

• Assist with planning and execution of NTSAD’s key development events, including:
  • Day of Hope
  • Rare Disease Month
  • Imagine & Believe
• Support event registration, logistics, and attendee follow up

• Provide warm, responsive support to families, donors, and community members via phone and email while triaging inquiries to the appropriate staff member
• Send personalized donor communications
• Support relationship-building efforts by helping ensure positive and meaningful constituent experiences

• 1+ year of administrative, fundraising, or nonprofit experience
• Strong organizational and time management skills, with the ability to manage multiple priorities
• Comprehensive familiarity with diverse philanthropic giving methods as well as accurate recording and acknowledgement of all gift types to ensure IRS and audit compliance
• Proficiency in Microsoft Office Suite (Word, Excel, Outlook, PowerPoint)
• Experience with donor databases (CRM) preferred
• Ability to work independently and manage multiple tasks
• Friendly, professional demeanor with a customer-service mindset
• Bachelor's degree preferred but not required

• Experience with Donor Perfect or similar donor management database
• Prior nonprofit, healthcare, advocacy, or association experience
• Familiarity with Canva, Constant Contact, or similar communication tools

• Part-time, approximately 20-25 hours/week
• Flexible schedule within Monday-Friday, 9am-5pm
• Ability to attend NTSAD’s Annual Family Conference, fundraising events, and other organizational programs as needed

Compensation
: $21.00 - $22.00/hour

In-person at our office, which is conveniently located near South Station in Boston, MA (02111)

• Flexible schedule (within regular business hours)
• Paid time off

NTSAD is committed to creating an inclusive and welcoming workplace. We encourage candidates from diverse backgrounds and experiences to apply.

Join us in making a meaningful impact on the lives of families facing rare diseases—with care, compassion, and purpose.