Director, US Rare Tumor Patient Marketing, Desmoid Tumor; DT

Director, US Rare Tumor Patient Marketing, Desmoid Tumor (DT)

Join to apply for the Director, US Rare Tumor Patient Marketing, Desmoid Tumor (DT) role at Spring Works Therapeutics.

Spring Works Therapeutics, a healthcare company of Merck KGaA, Darmstadt, Germany, is a commercial-stage biopharmaceutical company dedicated to improving the lives of patients with rare tumors. We developed and are commercializing the first and only FDA and EC approved medicine for adults with desmoid tumors and the first and only FDA and EC approved medicine for both adults and children with neurofibromatosis type 1 associated plexiform neurofibromas (NF1‑PN).

At Spring Works, we are committed to finding answers people with rare tumors need.

The Director, US Rare Tumor Patient Marketing, Desmoid Tumor (DT) will lead all patient marketing for the US Desmoid Tumor commercial brand team, which currently markets OGSIVEO (nirogacestat). This role will drive the development and implementation of insights‑driven and actionable strategy and tactics for DT patients and caregivers in the US market to drive patient engagement and help shape our future in DT.

It will require collaboration across cross‑functional teams, including but not limited to Medical Affairs, Patient Advocacy, Sales, Market Access and Patient Services, Communications, Regulatory, Compliance, Market Research, Commercial Operations, Legal, and commercial leadership. This position reports into the Senior Director, US Desmoid Tumor Brand Lead within the Rare Tumor Marketing team and will have one direct report.

This role will be required to work onsite 2 days a week (Tuesday and Wednesday) or more depending on business needs in our Boston, MA (Seaport) office.

• Lead patient strategy, messaging, and tactical plan development/execution for key disease education and branded activities, including campaign development, while determining budgets, timelines and metrics for program success
• Interpret and translate clinical data and market research insights for use in patient marketing materials
• Evolve patient digital marketing capability in partnership with Omnichannel Marketing to ensure team can execute on optichannel DTC promotional platform with an optimized marketing mix and refined audience targeting
• Provide strategic oversight for patient media plan development and performance measurement
• Cultivate strong relationships with patient advocacy groups, patient thought leaders, and external strategic partners in collaboration with patient advocacy and patient services
• Develop and execute full year patient advisory board plan to support business needs
• Understand the market landscape through direct patient learning opportunities and market insights and partner with commercial analytics and insights team to develop primary and secondary research plans
• Identify appropriate key performance indicators to measure and monitor and lead patient cross‑functional team tracking & performance analysis
• Contribute to the annual planning process, leading the short and long‑term patient strategy assessment and evolution, tactical marketing plan development, and annual budgeting
• Collaborate closely with brand marketers across Rare Tumors portfolio to align marketing tactics and share insights on patient/caregiver needs and opportunities
• Manage agency partners, project timelines, and resource allocation
• Model and foster a culture of collaboration and patient centricity
• Own patient marketing budget
• Manage and coach direct report
• Other duties as assigned

• Education:
  • Bachelor's degree (business or related disciplines)
  • MBA or other advanced degree preferred
• 8+ years (or 5+ years with advanced degree) proven experience in pharmaceutical and/or healthcare industry in‑line brand marketing
• Extensive patient and/or consumer marketing, with digital and personal engagement experience
• Available to travel up to 30%
• Rare disease and oncology experience preferred
• HCP marketing experience preferred
• Management experience preferred
• Ability to lead projects and make key decisions without day‑to‑day…