AD, Patient & Community Liaison - US Region

#LI
- Remote

This position must be based on the Central region of the U.S. (there may be some restrictions based on legal entity). The Central region includes, PA, OH, WV, KY, TN, MO, AR, MS, AL and FL. Please note that this role would not provide relocation as a result. The expectation of working hours and travel (domestic and/or international) will be defined by the hiring manager.

This position will require up to 70% travel with weekend travel required.

The Patient and Community Liaison (PCL) is an important patient and caregiver facing role within the Neuromuscular team, who engages with the Duchenne Muscular Dystrophy (DMD) and Spinal Muscular Atrophy (SMA) communities at live and virtual engagements. The PCL is primarily responsible for engaging with patients, caregivers and local community advocacy partners, while delivering education about DMD, SMA, Gene Therapy and branded education.

The education will be provided using approved materials, resources and talking points. Another key aspect to this role is building relationships with the local advocacy chapter leads. Key learnings from these stakeholders will be shared back with the advocacy, marketing strategy and product strategy teams, to support program development, material development and enhancements in our market strategy approach and activities.

• Deliver accurate and empathetic information about disease progression, symptoms, and unmet needs for patients and caregivers.
• Empower patients and caregivers with knowledge and tools to navigate their DMD or SMA journey.
• Educate patients and caregivers about the benefits, proper use, and potential side effects of the brand product(s), ensuring adherence to company-approved materials and guidelines. Provide resources and education on treatment expectations.
• Develop relationships with several local advocacy chapter leads throughout the country.
• Attend events throughout the country by hosting the Novartis table, meeting with DMD or SMA families, answering questions and delivering presentations. Majority of live events are held on weekends.
• Reactively respond to virtual inquiries from patients and/or caregivers that come through via phone or email.
• Hold virtual meetings with local patient advocacy leads and/or local communities to provide education. These events may occur on weekends or weekdays after hours.
• Provide insights/learnings to the cross functional teams to help support development of educational materials, presentations, and resources to support patient and caregiver understanding. Identify gaps in patient and caregiver knowledge and provide recommendations for improving educational content.
• Adhere to all regulatory and compliance standards related to patient and product education, inclusive of Adverse Events training and reporting. Document interactions and feedback from patients and caregivers to improve the education program and support outcomes tracking.
• Contribute and participate in required internal and business reviews; may include preparation of meeting materials. Contribute and participate in functional planning (eg. tactical plan, budget, etc.)
• Maintain working knowledge of required platforms and processes (eg. Concur, Salesforce, FUSE, etc.). Maintain high scientific and current knowledge about responsible products and therapeutic areas. Ensure compliance with all NVS policies and guidance including Code of Conduct and all applicable laws and regulations.

• Bachelor's degree in healthcare (i.e. social work, genetic counseling) education, or a related field
• Minimum of 5 years of experience in patient education, pharmaceutical, or healthcare support roles
• Ability to travel 70% of time (weekend…