Director, Data Governance and Compliance, Regeneron Genetics Center; RGC)

Build our future together:
The Director, Data Governance and Contract Compliance leads and ensures compliance across a large portfolio of global data licensing collaborations involving genetic and associated health data. You will serve as Regeneron Genetics Center's (RGC) internal resource on data privacy, genomic data governance, and cross-border data transfer; partnering with RGC counsel, research and technology teams, and the Privacy Office, to uphold the highest standards of data stewardship.

You will develop and implement operational policies, procedures, and risk mitigation strategies that enable scientific collaboration, while safeguarding individual data rights worldwide.

When & where:

Location:

Tarrytown, NY or Cambridge, MA Work model/flexibility: 4 days onsite

Lead compliance across approximately 150 global data licensing collaborations related to genetic and associated health data, including ongoing monitoring, risk assessment, and remediation. Partner with counsel to interpret and ensure compliance with international privacy regulations (General Data Protection Regulation (GDPR), Health Insurance Portability and Accountability Act (HIPAA) ), California Consumer Privacy Act and California Privacy Rights Act (CCPA/CPRA), and genomic data governance frameworks (NIH Genomic Data Sharing Policy, GA4GH), in data collaboration agreements and research operations.

Drive the development and operationalization of RGC data governance policies, procedures, consent frameworks, and data use agreements specific to genetic and health data. Lead all aspects of data security stewardship practices, evaluating and integrating emerging privacy-preserving technologies with the IT Security team. Monitor the evolving global regulatory landscape for genetic data governance, advising leadership on compliance risks and policy adaptations.

Lead, mentor, and develop a team of data governance and compliance professionals; championing a culture of accountability, transparency, inclusion, and continuous learning. Collaborate cross-functionally with Legal, IT Security, Research, and Business Development to embed privacy-by-design into data collaboration workflows and initiatives.

• A PhD in Genetics, Genomics, Bioethics, Life Sciences, or a related field; or a relevant degree with experience in data governance and compliance.
• An equivalent combination of advanced education and 10+ years of experience in data governance, compliance, or regulatory affairs; with at least 5 years focused on genetic or health data in research, biopharmaceutical, or biotech settings.
• CIPP/E or CIPP/US certifications are strongly preferred.

Does this sound like you?

We are committed to building a workplace with an inclusive culture.

Regeneron is an equal opportunity employer and all qualified applicants will receive consideration for employment without regard to race, color, religion or belief (or lack thereof), sex, sexual orientation, gender identity or expression, gender reassignment, marital or civil partnership status, civil status, pregnancy or parental status, age, disability, nationality, citizenship status, ethnic or national origin, membership of the Traveler community, familial status, genetic information, military or veteran status, or any other characteristic protected under applicable law.

Where required, we will provide reasonable accommodation to applicants with known disabilities or chronic illnesses during the recruitment process, unless such accommodation would impose undue hardship.

Where necessary, we disclose salary ranges for roles in all countries in which we operate. The final offer will be determined within the relevant range based on the country of employment, specific role…