Coordinator, Care Services

_The ALS Association is the largest ALS organization in the world. The ALS Association funds global research collaborations, assists people with ALS and their families through its nationwide network of care and certified clinical care centers, and advocates for better public policies for people with ALS. The mission of the ALS Association is to make ALS livable and cure it. For more information about the ALS Association, visit our website .org

* This is a remote, part-time position (24 hours per week) based in Alaska. Candidates must reside in Alaska, with preference given to those located in Anchorage, AK*

Reporting to the Care Services Director or Care Services Manager, the Care Services Coordinator will provide comprehensive and professional services, community resources, education, and advocacy to people with ALS, their families, and caregivers in Alaska.

• Respond to persons living with ALS, their families, and caregivers’ inquiries for information on ALS and/or community resources.
• Assist persons living with ALS to register with The ALS Association as well as the ALS National Registry.
• Receive referrals and obtains all necessary patient, medical, demographic information, and documents from referral sources via various communication methods to establish and coordinate a plan of care.
• Assess both physical and psychosocial needs of those living with ALS and families, based on knowledge of ALS, the disease, and its ramifications.
• Conduct specialized care consultations and needs assessment for people living with ALS, caregivers, and family a variety of settings including office visits, phone/email, in clinic, at support groups, virtual home visits, or in person home visits, when appropriate.
• Advocate and assist people living with ALS obtain equipment, services, and care to improve quality of life.
• Consistently maintain quarterly contact/engagement with those living with ALS and/or their caregiver based on assigned area within the territory.
• Connect people living with ALS, caregivers, and families to programs and services provided by The ALS Association.
• Document all pertinent engagements with persons living with ALS, family, caregivers, or other healthcare professionals involved with the delivery of care and support in Salesforce.
• Responsible for educating and informing the general public and professionals about the nature of ALS, its management, related research, and the existence of services of The ALS Association.
• Update supervisor with respect to local community resources and educate those served regarding available resources.
• Facilitate support groups, engage participants, and schedule speakers as appropriate to meet the needs of the group.
• Serve as a member of the ALS Clinic multidisciplinary team and function as the liaison between the clinic and The Association.
• In partnership with supervisor, participate in Care Services program measurement and evaluation.
• Initiate and cultivate relationships with allied health professionals and community social and healthcare organizations.
• Provide professional in-service educational programs to healthcare professionals such as: home health and hospice agencies, Durable Medical Equipment (DME) providers, and Skilled Nursing Facilities.
• Participate in continuing education seminars, workshops, and conferences as available and necessary to gain knowledge on related topics.
• Performs other related duties as assigned by management.

• Bachelor’s degree in social work, nursing, public health, or related area. Occupational therapist, physical therapist, speech therapist or direct experience working with the ALS population may be considered.
• Associate’s Degree may be considered if combined with 3+ years…