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Rare Disease Case Manager

Job in Miami, Miami-Dade County, Florida, 33222, USA
Listing for: UCB Inc.
Full Time position
Listed on 2026-02-16
Job specializations:
  • Healthcare
    Healthcare Administration, Healthcare Management
Salary/Wage Range or Industry Benchmark: 60000 - 80000 USD Yearly USD 60000.00 80000.00 YEAR
Job Description & How to Apply Below

Make your mark for patients

We are looking for a Rare Disease Case Manager for the Central Region who is adaptable, highly collaborative and solution oriented to join us in our Patient Support Program.
This position can be remote/virtual, based in the US supporting the Central & Eastern time zones. The standard hours of operations for this role is 8:30am to 5:00pm CST or EST dependent upon place of residence. This remote role requires twenty percent face‑to‑face interactions and can be based on the following metropolitan areas and subject to change:
Florida, Atlanta GA, Lexington KY, Memphis & Knoxville TN, and Birmingham AL.

About the role

The Rare Disease Case Manager serves as a subject matter expert on access & reimbursement who has extensive expertise in navigating insurance and access‑related barriers. This role is designed to help patients gain access to prescribed UCB rare disease products and patient support, serving as the escalation point for difficult access related patient cases. This individual will share insights and collaboratively coordinate services with internal and external program partners.

This role requires significant knowledge in the market access and reimbursement landscape encompassing procurement, payer policies and coverage, benefit design, prior authorizations, appeals, exceptions, denials, coding and payer payment guidelines, site of care differences and nuances.

Who you'll work with
  • Case Managers
  • Rare Reimbursement Executives
  • Care Coordinators
  • Cross‑functional partners including specialty, HUB partners, payers, and as needed, physicians, office coordinators, nurses and pharmacists
What you’ll do
  • Serve as expert on challenging market access patient cases specific to benefit verifications, product procurement processes, reimbursement information, billing, coding, and coverage details, after clinical decisions have been made by the prescriber.
  • Coordinate the benefit verification referral process with UCB’s service center(s) and deliver timely and accurate follow‑up to account stakeholders to help ensure patient access to UCB medicines.
  • Provide appropriate Appeal & Claims Denial Support.
  • Understand, provide quality control, communicate patient‑specific insurance coverage along with access and affordability options to team to support patients.
  • Establish self as national and regional expert on payer trends, product access, and reporting reimbursement trends and/or delays (i.e., denials, underpayment, access delays, etc.).
  • Coordinate and collaborate with UCB Rare Reimbursement Executives, Care Coordinators, specialty pharmacies, needed HCP offices, infusion providers, other key personnel on complex cases which require strategic intervention.
  • Manage and facilitate specialty pharmacy relationships, responsible for dispersing updates to team members and ensuring forward patient momentum.
  • Ensure understanding of the buy‑and‑bill reimbursement process, specialty pharmacies practices, field reimbursement support activities, and patient support programs.
Education, experience and skills
  • Bachelor’s degree
  • 8‑10 years of experience in pharma, biotech, or healthcare space
  • 5+ years of Case manager experience supporting market access, site of care selection
  • 5+ years of excellent working knowledge of evolving reimbursement landscape and the practice management environment
  • Ability to travel minimum of 20%
Preferred
  • Master’s preferred, or extensive relevant experience
  • Rare disease and/or infusion experience
  • Nursing degree/healthcare clinical experience
  • Above‑average skills with technology, including ability to quickly learn and accurately utilize contact center systems, CRM, and virtual platforms
  • Experience in managing access complexities associated with a new to market medication
  • Experience with specialty pharmacy products / products acquired through specialty pharmacy networks or specialty distributors (buy‑and‑bill)
  • Close connectivity to the ever changing payor medical benefit policy arena
  • Excellent virtual interaction and communication skills – both written and verbal
  • Demonstrated flexibility, adaptability, and the ability to prioritize tasks and meet customer demands

This position’s reasonably anticipated…

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