Rare Blood Community Liaison - Midwest

The Rare Disease organization leads all US Commercial efforts for Novo Nordisk’s Rare Disease portfolio. The Rare Disease portfolio includes medical treatments, customer solutions, and devices across multiple Therapy Areas including Rare Bleeding Disorders, Rare Endocrine Disorders, Rare Renal Disorders, and Hemoglobinopathies (Sickle Cell Disease & Beta Thalassemia), as well as new products in the pipeline.

The Rare Disease organization is responsible for leading the enterprise approach to achieving our patient care goals and financial objectives, devising and delivering transformative patient and customer experiences, addressing unmet needs across the communities we serve, and setting the industry standard for extraordinary execution. The team members collaborate and partner cross functionally with multiple functions and groups throughout the US organization, Clinical Development, Research & Early Development, other affiliates, and the Global HQ teams.

We are looking for highly motivated individuals who are strategic and bold thinkers, passionate and dedicated to driving change in Rare Disease, patient focused, strong collaborators, and inclusive leaders, as we embark on shaping our exciting future and improving the lives of more patients than ever before.

Attends, and when possible assists with planning events held by patient organizations in his/her territory, and represents Novo Nordisk, Inc. (NNI) at selected national events hosted by those patient organizations. Events may include fundraising/volunteering efforts along with representation at educational meetings. Collaborates with Market Access and Government Affairs teams when advocacy issues arise and as appropriate. Cultivates relationships with patients, caregivers and other community stakeholders by participating in and assisting with community events on behalf of NNI.

Establishes and manages relationships with key patient organizations, including local chapters of the National Hemophilia Foundation and, Hemophilia Federation of America chapters etc. Regularly communicates perspectives, findings and insights to Rare Disease leadership through informal and formal (e.g., oral and written presentations) mechanisms Includes sharing insights and competitive intelligence within the hemophilia area. Represents NNI to the Hemophilia patient community and patient organizations (e.g., local hemophilia chapters) with the goal of increasing patient awareness of Novo Nordisks hemophilia products and patient support programs in an assigned territory.

Serves as the center of coordination for patient-related activities across patient community and the broader NNI organization (both within Rare Disease and relevant functions outside of Rare Disease) to ensure that learnings from patients, caregivers and other stakeholders are incorporated into the Rare Disease strategy and business decisions.

Helps identify when home office support and presence is needed at larger community based events such as chapter meetings and other functions. Member of the Community Engagement Field Force and has interactions with Rare Blood Marketing to provide feedback on development of direct-to-patient materials, tools and programs. Reports directly to Rare Blood Community Liaison Leader and interacts with other Rare Blood Community Liaisons (RBCL) and other relevant NNI functions including Government Affairs

• Develops direct relationships with patients/caregivers and other haemophilia community members including haemophilia organizations and chapters, state and local advocacy groups
• Executes patient and caregiver educational meetings / exhibits at chapter events, home care meetings, patient conventions, patient dinners, support at community events/camps, etc. about haemophilia and NNI products and services within relevant guidelines
• Plans and conducts meetings with state and local chapters with the goal of educating patients, caregivers, and other stakeholders on NNIs products and services within relevant guidelines
• Promotes NNI haemophilia products and services to patients and caregivers within the haemophilia community
• Coordinates…