Volunteer: Development & Community ; Online​/On-site

Volunteers with an interest in development

Rohhad Nordic is looking for volunteers with an interest in developing the association.

Are you passionate about making a difference and do you want to be part of a committed community? We are looking for new volunteers who can contribute to the development of Rohhad Nordic.

As a volunteer, you will work with the board, and currently the board consists of three members.

About the association

Rohhad Nordic was founded in 2024 as a non‑profit organization, with the aim of creating a supportive community for everyone affected by the diagnosis of ROHHAD. We also work actively to provide financial support for medical research into the disease. The organization is part of RIC (Rohhad International Consortium) and collaborates closely with other international ROHHAD organizations. Our goal is to give people with the diagnosis and their relatives hope, strength and courage to look forward to a brighter future.

We are looking for someone who can help with:

• The daily operation of the association and fund applications
• Preparation of SoMe content
• Come up with ideas for the development and growth of the association
• Contribute with good mood and positive energy

Practical information:

• The work is unpaid and 100% voluntary.
• The work can be done both online and in person.

We look forward to hearing from you!

Best regards,
The Board of Directors, Rohhad Nordic

Volunteering is for everyone - we welcome all applicants regardless of gender, ethnicity, nationality, social background, sexual orientation or religious background.