Nurse Program Coord - Genetics Clinic

Position Summary

The Nurse Program Coordinator will support the Genetics team by coordinating care for pediatric patients diagnosed with Lysosomal Storage Disorders (LSDs). These rare genetic conditions require lifelong enzyme replacement therapy and highly coordinated care between the clinic, infusion center, specialty pharmacies, home health agencies, patients, and families. Phoenix Children’s is one of the few hospitals providing this specialized care, making this a unique opportunity to positively impact the lives of children with rare diseases.

• RN with 2-3 years of recent clinical nursing experience
• Inpatient and/or outpatient nursing experience preferred
• Strong organizational, multitasking, and care coordination skills

• Coordinate care for approximately 100 active patients receiving enzyme replacement therapy for Lysosomal Storage Disorders.
• Collaborate with the Infusion Center to schedule weekly to monthly enzyme replacement infusions.
• Coordinate with specialty pharmacies to ensure medications are obtained and delivered prior to scheduled infusion appointments.
• Arrange home infusion services for patients receiving treatment outside the hospital by partnering with home health agencies and specialty pharmacies to ensure medications are delivered and administered on time.
• Coordinate clinic visits, including chart preparation, obtaining outside laboratory results, and arranging laboratory testing following appointments.
• Serve as a liaison between providers, families, infusion services, specialty pharmacies, home health agencies, and other multidisciplinary team members.
• Assist with ongoing management of patients from newborn diagnosis through adulthood as advances in treatment continue to improve life expectancy.
• Ensure timely coordination of therapy, as missed enzyme replacement treatments can lead to developmental delays and disease progression.

• Highly organized with exceptional attention to detail.
• Able to manage multiple priorities and coordinate care across several departments and external partners.
• Comfortable delegating tasks and collaborating with multidisciplinary teams.
• Passionate about learning and caring for patients with rare genetic disorders.
• Interested in emerging therapies and advancements in genetic medicine.
• Enjoys building long‑term relationships with patients and families while serving as a key resource throughout their treatment journey.

This position coordinates the patient care services, workflow, and activities provided by nursing and support staff of assigned program. This position provides guidance, support, and direction to staff to ensure consistent provision of developmentally appropriate quality patient care in accordance with all applicable federal, regulatory, and professional standards and requirements.

• Bachelors degree in Nursing or equivalent combination of education and experience. (Required)
• Masters degree in Nursing. (Preferred)

• Three years clinical practice experience. (Required)
• Experience with pediatric patient populations. (Preferred)

• Current State of Arizona RN license OR an RN license from a compact state with multi‑state privileges OR ability to establish required Arizona RN licensure prior to start date. (Required)
• Current BLS certification from the American Heart Association. (Required)