Duchenne Nurse Educator

Why Sarepta? Why Now?

The promise of genetic medicine has arrived, and Sarepta is at the forefront. We hold a leadership position in Duchenne muscular dystrophy (Duchenne) and are building a robust portfolio of programs across muscle, central nervous system, and cardiac diseases. In 2023, we launched our fourth therapy and the first ever gene therapy to treat Duchenne.

We’re looking for people who see unlimited potential in themselves and who are motivated by an unwavering commitment to patients.

At Sarepta, we care deeply about all the people in our community and believe in the importance of supporting them in all aspects of their lives. We aspire to maintain a culture that acknowledges people bring their whole selves to work, and we will strive to help everyone in our community integrate their work and personal lives while maintaining productivity. We are committed to offering a range of benefits and work‑life resources designed to support people in the following areas:

• Physical and Emotional Wellness
• Financial Wellness
• Support for Caregivers

The Duchenne Nurse Educator (DNE) works in a highly visible, dedicated team environment. The DNE will support health care providers (HCPs), patients, and caregivers through education on Duchenne Muscular Dystrophy (DMD), the infusion process of our approved therapies, and Sarepta patient support programs. This role develops relationships with HCPs, patients, and caregivers to support both the HCPs and the families through their journey on therapy.

The DNE also collaborates closely with cross‑functional partners to ensure ongoing compliance with therapy. This position covers Washington, Oregon, Northern California, Utah, Montana, Idaho, Wyoming, and Alaska.

The DNE is assigned to special projects as required, such as providing nurse triage support during 24‑hour on‑call shift coverage. Triage support utilizes the nursing process to liaise with patient care teams to evaluate patient safety needs over the telephone. The DNE serves as a connection between patient care teams and an experienced physician with deep Duchenne and precision medicine expertise, providing guidance to patient care teams while adhering to organizational policies, procedures, and guidelines.

• Educate providers, infusion nurses, patients, and caregivers on Sarepta’s approved therapies for DMD and the infusion process.
• Serve as recognized expert on DMD education (genotype, deletions, disease process, etc.)
• Stay current on the DMD environment.
• Collaborate with internal cross‑functional partners and external partners to ensure ongoing support to HCPs, patients, and families.
• Present to audiences compliantly.
• Conduct programs for disease state awareness.
• Assist in improving the infusion experience for DMD patients by providing ongoing support to infusion nurses and sharing best practices.
• Work with Sarept Assist team and specialty pharmacy to ensure smooth transition from infusion center to home infusion for PMO therapies.
• Support patients and families as requested by case manager or health care provider.
• Attend advocacy meetings and represent Sarepta at industry conferences.
• Travel to training meetings, medical offices, and home health agencies, as necessary.
• Other related duties as required.
• Special projects include triage nursing support: triage telephone calls from patient care teams requiring medical guidance post‑gene therapy treatment during rotating 24‑hour on‑call shifts, intake and interpretation of medical information to triage calls appropriately, liaison between patient’s care teams and physician, documentation of calls according to established guidelines (PV reporting), directing the patient care team to…