Medical Grant Writer

We are looking for an experienced Medical Grant Writer (Freelance, Remote) to support a nonprofit organization dedicated to improving the lives of individuals and families affected by Barth syndrome, an ultra‑rare disease. The organization raises funds to advance scientific research and treatments, support affected individuals and families, and strengthen the global Barth syndrome community.

The ideal candidate has a strong track record of researching funding opportunities and developing compelling, successful grant proposals for nonprofit, healthcare, rare disease, medical research, or patient advocacy organizations. Through strategic prospect research and high‑quality proposal development, this role will help strengthen the organization's institutional funding pipeline and clearly communicate its impact, priorities, and funding needs to prospective funders.

• Research and identify relevant foundation, corporate, government, and institutional grant opportunities.
• Develop and submit compelling grant proposals, letters of inquiry, applications, and supporting materials.
• Collaborate with internal stakeholders to gather research, program, impact, financial, and organisational information needed for applications.
• Maintain grant calendars and track deadlines, submissions, reporting requirements, and funding outcomes.
• Support grant reporting, funder communications, and proposal revisions as needed.

• Strong track record of developing successful grant proposals and securing institutional funding.
• Significant grant writing and fundraising experience within nonprofit, healthcare, medical research, rare disease, patient advocacy, or related sectors.
• Strong understanding of grant prospecting, funder research, proposal strategy, and institutional fundraising.
• Strong grant research, proposal writing, storytelling, editing, and communication skills.
• Highly organised and able to manage multiple applications and deadlines independently.